H.R. 4709In committeeHealth care
Bill would extend newborn screening programs and boost funding through 2030
Data as of July 12, 2026
HR 4709 reauthorizes newborn genetic screening programs through 2030 with increased funding caps.40-second read · 5 questions answered below
Decoded
What does this do?
HR 4709 renews federal newborn screening programs through 2030 and raises allowed funding, one stream from about $11.9 million to $20.9 million and another from $8 million to $22.25 million per year. It updates the expert advisory committee's public reporting duties, improves post-screening data tracking between states and registries, and makes the Hunter Kelly Research Program mandatory.
Who does it affect?
State health departments, hospitals, medical laboratories, parents of newborns, and rare-disease researchers are affected.
Why does it matter?
Because it reauthorizes and expands existing programs rather than creating new ones, it would mainly result in more consistent funding and better coordination for screening and follow-up care nationwide.
What does it cost, and who pays?
- Funding extended through 2030
- One stream: $11.9M to $20.9M
- Other stream: $8M to $22.25M
Where does it stand?
- Introduced
- House committee — You are here
- House vote
- Senate
- President's desk
Right now: a House committee is reviewing it. If the Senate changes it, it goes back to the House before reaching the President.
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Official title
Newborn Screening Saves Lives Reauthorization Act of 2025
- Introduced:
- July 23, 2025
- Latest action:
- September 10, 2025
Forwarded by Subcommittee to Full Committee by Voice Vote.
Read the official bill on Congress.govMake the call
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