Federal bill targets stillbirth data collection and education

What does this do?

This bill directs the federal government to improve how the U.S. tracks and studies stillbirths — when a baby dies before birth. States could receive grants to collect and analyze stillbirth data, including risk factors, while protecting patient privacy. The Secretary of Health and Human Services would also be required to create data collection guidelines and publicly available educational materials.

Who does it affect?

State public health agencies and pregnancy care providers would carry out much of the work under this bill. Families who have experienced or may experience a stillbirth are among those most directly affected.

Why does it matter?

Without consistent guidelines, states may collect stillbirth data in different ways, making it harder to study the issue nationally. A public report summarizing the guidelines and educational materials would be required within five years of the bill becoming law.

What does it cost, and who pays?

• Grants up to $5M/year
• 5-year funding
• States collect stillbirth data

Where does it stand?