Medicare would cover bundled ALS care at $800 per visit starting 2027

What does this do?

Starting in 2027, Medicare would pay providers a flat fee of $800 per visit to deliver a bundled package of services to ALS patients, covering doctor visits, physical therapy, speech therapy, occupational therapy, nutrition support, respiratory care, equipment assistance, and telehealth. Patients would pay nothing out of pocket for this package. The payment rate would be adjusted over time to account for rising costs.

Who does it affect?

The bill directly affects Medicare patients diagnosed with ALS, the clinics and providers who treat them, and researchers working on ALS treatments. The Department of Health and Human Services would also be required to act under a separate provision of the bill.

Why does it matter?

Including telehealth in the bundled services means ALS patients in rural areas or regions with few specialists would have a pathway to receive specialized care without traveling long distances. A required report to Congress on ALS clinical trial challenges, due within 90 days of enactment, could shape future government action on research funding and staffing shortages.

What does it cost, and who pays?

• $800 flat Medicare payment per visit
• No out-of-pocket cost for patients
• Rate adjusted over time for rising costs

Where does it stand?