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S. 1838119th CongressIn committeeLatest action May 21, 2025Decoded by AI · checked against the record
Official title: DeOndra Dixon INCLUDE Project Act of 2025
Introduced:
Read the official bill on Congress.govThe plain-language version leads. The official text is always the reference.
The bill formally establishes the INCLUDE Project, an NIH research program dedicated to Down syndrome.
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This bill, named after DeOndra Dixon, would formally establish an NIH research program on Down syndrome called the INCLUDE Project. It directs NIH to fund research, training, and studies covering basic science, a large participant database, expanded clinical trials, biological markers, and conditions like Alzheimer's disease and autoimmune disorders that occur more often in people with Down syndrome.
The bill mainly affects people with Down syndrome and their families, along with researchers, hospitals, and universities that may receive federal grants, and NIH staff overseeing the program.
NIH would need to coordinate research across its institutes to avoid duplicating existing work and would be required to report to Congress every two years on research conducted and resulting medical benefits.
AI-drafted summary. Verify it against the official text before you act on it. Read the official bill on Congress.gov
Right now: a Senate committee is reviewing it. If the House changes it, it goes back to the Senate before reaching the President.
Latest action: — Read twice and referred to the Committee on Health, Education, Labor, and Pensions.