Bill would create national NIH research program on Down syndrome
Passed one chamberS. 1838Latest action
Sponsor: John W. Hickenlooper · Senator · CO
AIDecoded by AI · checked against the recordRead the official text
Official title: DeOndra Dixon INCLUDE Project Act of 2025
119th Congress
Topics: Health care
Introduced:
Read the official bill on Congress.govIn plain words
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The bill formally establishes the INCLUDE Project, an NIH research program dedicated to Down syndrome.
40-second read · 4 questions answered below
What does this do?
This bill, named after DeOndra Dixon, would formally establish an NIH research program on Down syndrome called the INCLUDE Project. It directs NIH to fund research, training, and studies covering basic science, a large participant database, expanded clinical trials, biological markers, and conditions like Alzheimer's disease and autoimmune disorders that occur more often in people with Down syndrome.
Who does it affect?
The bill mainly affects people with Down syndrome and their families, along with researchers, hospitals, and universities that may receive federal grants, and NIH staff overseeing the program.
Why does it matter?
NIH would need to coordinate research across its institutes to avoid duplicating existing work and would be required to report to Congress every two years on research conducted and resulting medical benefits.
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Where does it stand?
- IntroducedMay 21, 2025
- Senate committee
- Senate vote
- HouseYou are here · Aug 10, 2026
- The president's desk
Right now: it passed the Senate, and the official record shows nothing new since. If the House changes it, it goes back to the Senate before reaching the president.
Latest action: — Held at the desk.