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H.R. 3491119th CongressPassed one chamberLatest action Jul 21, 2026Decoded by AI · checked against the record
Official title: DeOndra Dixon INCLUDE Project Act of 2025
Introduced:
Read the official bill on Congress.govThe plain-language version leads. The official text is always the reference.
HR 3491 would require NIH to formally establish the INCLUDE Project, a research program focused on Down syndrome across all life stages.
55-second read · 4 questions answered below
This bill would direct the National Institutes of Health (NIH) to officially create and run a research program called the INCLUDE Project. The program would fund studies on Down syndrome across a person's entire life, support clinical trials that include people with Down syndrome, and research conditions that often occur alongside it, such as Alzheimer's disease and autoimmune disorders. NIH would also be required to coordinate across its agencies to avoid repeated work and to consult regularly with patient advocates and those directly affected by Down syndrome.
This bill most directly affects people with Down syndrome, their families, and caregivers, as well as the medical and research communities that work with them. People interested in related conditions like Alzheimer's disease may also be affected, since findings from this research could apply more broadly.
If passed, NIH would be legally required to run this program, report to Congress every two years on research activity and real-world results, and involve affected communities in setting research priorities. Without the bill, no such formal requirement exists.
AI-drafted summary. Verify it against the official text before you act on it. Read the official bill on Congress.gov
Right now: it passed the House, and the official record shows nothing new since. If the Senate changes it, it goes back to the House before reaching the President.
Latest action: — Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.